Quick update:
Amazing news!!!! Our Mason had an in depth hearing test and his hearing is perfect!!!! We can't believe it! Apparently, the "other" hospital did the wrong type of hearing test! Anyways, we couldn't be happier right now. God works in mysterious ways!!
Wow. It is amazing how things change so quickly. We are now currently at Riley's Children's Hospital in Indianapolis. (I will tell you how wonderful it is in a minute).
But this is how our day played out yesterday....quite an eventful day I must say!!
8:00 am- I am in the shower heading up to Community Hospital to see Mason
8:02 am- Still in the shower, Scott comes in to tell me Community got Mason a bed at Riley's and they will be there to pick him up in a few hours.
9:15 am- Scott and I arrive at Community to see Mason and get him all set up for transport....also our final visit with Mason's favorite nurse Diane.
9:20 am- Diane fills mom and dad in on transport details......Riley is on the way to get Mason...By Plane!
9:30-11:00 am- Scott and I feeding Mason and filling out a lot of paper work.
11:00 am- Scary people in Top Gun jumpsuits come to say they are there to take my baby! Mason quickly swept away into the Isolette on a Gurney!
11:20 am- Scott and I arrive at Gary Int. Airport to see off our Mason!
11:45 am- Iceman, Maverick, and Goose, all load Mason and his belongings into the plane. (I am crying).
12:00 am- We Have Liftoff! (can you hear the Top Gun music?) Mason is airborne! (only a 35 min plane ride!!)
Okay, so after that I get home, pack up, get a call Mason got there safely (Whew!), load up the car with Reece coming along......2 + hour car ride and Reece talks the entire time!!
Finally get here...get in to see our Mason.....he is still in one piece and as precious as can be!
Of course Reece is bored and cries he wants to go home! Scott takes Reece down the street to a hotel (which Reece told me was gross and old. Oh yeah and there was a big spider in the shower...EEEK!) Thank goodness I stayed with Mason...except no sleep here...Mason had every test under the sun! This would of taken a month at Community!! But Mason slept through the entire night!! Poor baby, tuckered himself out!
Well, coming here turned out to be a blessing....we are finding things out that we didn't know, or they didn't find at Community. I'll post more later.....
Yesterday Mason Turned Three Weeks Old, Today He Weighs 5 lbs and 1/2 oz!! On The Road To Coming Home!!
Mommy's Big Boy!
I can't beleive it has been over two weeks since Mason was born. However, it seems as if he has been in the NICU forever now!! It is so exhausting going up 2 sometimes 3 times a day...not to mention getting up twice a night to pump! (I could open my own dairy!) I am not meaning to complain, but I just want to bring my boy home!! It is so hard to leave him every single night. I know he is in good care, but I just want to get him home to start living our lives with him in our everyday activities. Reece asks every day if this is the day Mason gets to come home! I think he is even more impatient than I am!!
Scott and I feel as if we have been on a roller coaster for the past two weeks. Having a child born with a syndrome which no one has ever seen nor heard about can be the most terrifying thing for a parent to experience. The mere thought of my child struggling or hurting just tears me to pieces. At first I kept wondering "Why Me?" But now it is a different "Why Me?" I wonder why God picked me to be the mother of this amazing and special little boy. I have great fears....fears that I will not be everything he needs me to be....fears I cannot even describe. He continues to amaze us everyday....he has already beat a number of odds....he is so much stronger than I could ever be....he is just a little angel!!!
Please take a moment to visit www.cdlsusa.org.
Say Cheese!!
Mason and Daddy
Mason and Mommy
So Sleepy!!
Burp!!
